Remember, you can only do your best.
Here we give you some information and some guidance on the needs of children and young people when someone important in their life has died.
We have split this information into sections containing additional information. However, if you would prefer to read a single document with all the information included, you can download the Guide for parents or carers (in various languages) below.
The death of someone in the family, whether sudden or expected, changes everything.
The ways in which families make sense of, and cope with, their grief vary greatly.
Everyone’s bereavement journey will be unique. But grief is normal – and necessary – and needs to be expressed.
Although supporting a bereaved child can seem daunting, there are simple, straightforward and practical ways which can make a real difference.
With support and information, young people can be helped to understand what has happened and can slowly learn to live with their loss.
Early on for a child, how a person died is usually less important than it is for adults. No means or cause of death is better or worse than another for a grieving child. They are all overwhelming.
If a death is expected (for example, through cancer or other illness), the family may have had time to prepare for the loss. They may have begun to adjust to the future without the person, to make sure that photographs have been taken, letters to open in the future have been written, goodbyes said. It is very likely that the family will have received help – and will continue to receive help – from a hospice-based service or other support service (such as Macmillan nurses).
However, the family may also have suffered through a prolonged period of stress in which the children felt unable to undertake normal activities or to rebel or have fun; a period when the family focused on the person who was dying in a way that the children found very hard.
If a death is sudden (for example, through a heart attack or road accident) there is no chance for goodbyes and no chance for preparations or adjustment. The last conversations linger in the memory. There is no professional whose role it is to support these bereaved families (although police family liaison officers and hospital-based bereavement services make valuable contributions). However, for some people, a sudden death may be seen more positively (for example, of a frail grandmother).
If a death is through suicide, there are particular difficulties for the families left behind. It has been estimated that for every suicide, six people will experience intense grief – and many more will be deeply affected. Those bereaved through suicide face especially intense feelings and thoughts, ask themselves more agonising questions and face more public scrutiny. For both children and adults, it can take a long time to dare to trust others again.
Families and individuals within families can have very different views on whether children should see the body after death or attend the funeral.
From our conversations with bereaved children and young people, we know that they value the chance to choose. We have spoken to many children who are really pleased that they did manage to attend the funeral and we have spoken to many others who did not go and later deeply regretted it. In order to make a sensible choice about going or not, they need to know what is involved.
Why it can help to see the body and attend the funeral
Families will have different cultural and religious beliefs about seeing the person who has died and attending the funeral, but it can help a child to:
Probably the biggest factor that will affect a younger child’s attendance at a funeral is if they feel their presence is welcome there. If there is going to be tension (as opposed to sadness) they will pick this up and feel more distressed by the atmosphere than by what is happening. Many children understand and appreciate sharing in other people’s sadness- after all it is what they are feeling too. It’s your family. You know them best.
If it will not be possible or appropriate for your children to attend the funeral, for whatever reason, there are other positive ways in which they can be involved. If the funeral happened a while ago and your children have regrets that they did not attend, it is never too late to have a memorial or other ceremony that includes them saying ‘goodbye’. Please view information on alternative goodbyes.
Call the Helpline (08088 020 021) if you would like to talk about your children attending a funeral or viewing the body.
Children experience grief differently to adults. For adults, it feels like having to wade through rivers of grief, and they may get stuck in the middle of a wide sea of grieving. For children, their grieving can seem more like leaping in and out of puddles. First reactions may range from great distress to seeming not to be interested. One minute, they may be sobbing, the next they are asking: “What’s for tea?” It does not mean they care any the less about what has happened.
Talking to your child about the death of someone close may be the hardest thing you have ever done or will ever do.
Yet to keep talking about the person who has died – offering information, remembering memories and stories, and sharing feelings – is one of the most important things you can do to help your child as they journey through grief. One of their greatest fears is that they will forget the person who died.
When children ask difficult questions, there is no automatic need to give a long explanation. It is often best to start by asking: ‘What do you think?’, and then building on their answer.
Younger children may be confused by some of the everyday expressions that people use when someone dies, such as describing the person as ‘lost’, ‘gone’ or ‘passed away’. It is best to keep language simple and direct. Saying that someone has ‘died’ or is ‘dead’ is honest, helps to avoid confusion, and encourages acceptance.
Some feedback we have had from children
When young children hear answers such as ‘we’ve lost your mother ‘ they may feel confused wondering why no one is looking for her. Similarly answers such as ‘Granny has gone to sleep or passed away in her sleep’ may prompt a child to worry about going to sleep at night keeping them (and parents) awake.
Even the language we use with the very best intentions of giving appropriate and accurate descriptions can confuse a child. Take a moment to think about it from their point of view. Here are some examples of misunderstandings that children have shared with us:
‘Someone attacked daddy in his heart but I couldn’t see the cuts.” (His father had a heart attack.)
“They told me my baby sister was born dead. But how could she be both?” (Her sister was stillborn.)
“If he passed his HIV on, why did he still have it?”
The language surrounding funeral rites can also confuse. Children who are asked if they want to see their mother’s body have asked: “Why not her head too?” Similarly, when people talk of burying or cremating someone’s body, children can wonder what happens to all the other bits.
“She was beside herself when I suggested she came with me to see the new headstone on her mum’s grave. It was only later that she told me she’d thought it would be her mum’s head changed into stone. Logical really because we talk of her body being in the grave.”
Children who have always been told to avoid fire and flames may be alarmed at the idea that their relative’s body is to be burnt.
Families try to tell their children what they believe about life after death. Some families may believe in a heaven or another place beyond this world. Some may believe that the person who has died is a star, or an angel, or is ‘all around us’. Some may believe that the dead person will be reborn in some form. Some may believe that death is an ending.
Young children sometimes misunderstand what these ideas mean. Children have told us that if the person who has died has gone to heaven or is watching over them that they worry whether they will be seen when they are being naughty or want to be private. They wonder why their parents don’t ring or write from heaven. They struggle to understand how grandad can become a planet.
“Mummy said daddy had gone to heaven. But she won’t take me to see him”.
“Granny lives in Cornwall so I don’t see why we can’t go and visit him: you go through heaven to get there.”
“Gran says mum can see me all the time. So she must have seen me hide the sweets. She won’t love me any more because I said I hadn’t.”
It may be best to say something like: ‘People have all sorts of beliefs about what happens after someone dies. We know that they can’t come back and visit us or ring on the phone. Being dead isn’t like being in another country. These are some of the things that people believe – and I believe this – I wonder what you believe? You may change what you believe as you grow older’.
Our national Helpline offers support, information and guidance to anyone caring for or supporting a bereaved child or young person.
Most children and their families will be able to cope with the death of a close family member, especially if families can talk about what is happening, about their thoughts and feelings, and about the person who has died.
More information on what activities could help you can be found in the pdf section below.
Community-based local bereavement services for young people can offer support, and help children and families begin to rebuild their lives following a death in the family.
Many people worry about their children and they sometimes feel they should seek professional help immediately after the death. Children and young people will have a range of reactions that may cause concern at this time. These may include: not talking about the person who has died, deep sadness, rage, disturbed sleep, nightmares, lack of appetite or over-eating, lack of interest in previous enthusiasms, not wanting to attend school or see friends. Adults may have similar reactions.
Most of these changes will disappear gradually. However, if they persist or become severe (for example, a child almost stops sleeping or a teenager considers suicide as a way of rejoining the person who has died), it may be best to seek help. You could start by talking to your family doctor.
The Winston’s Wish Helpline is here to offer support, guidance and information to anyone caring for a bereaved child. We can talk with you about how your child is reacting and offer suggestions for further support if this seems appropriate.
There will be many moments when you will want to remember the person who died. However, special occasions such as birthdays and anniversaries can evoke more memories than usual.
Some people find it helpful to mark these occasions by creating activities to remember the person who died (see the suggestions below). Winston’s Wish Young Ambassador Liv Kyte, whose mum died in 2007, talks about how she spends Mother’s Day and suggests some ideas for remembering those special moments.
“Mother’s Day is never an easy time of year for me. Like most events throughout the year – birthdays, Christmas etc. there will always be that one person who is missing. But there’s no reason why you can’t turn that into a happy feeling rather than a sad one.
I lost my mum to cancer just before Christmas in 2007. When these events are looming in my family we have learned that the best way to keep smiles on our faces (as we know that’s what she would have wanted) is to be together. Having a close group of family or friends around you means you can remember together and keep each other’s spirits high.
With Mother’s Day coming up there are constant reminders – TV adverts and billboards and every shop is filled with cards and teddy bears. Every time I see these I picture my mum smiling back at me and remember some of the best Mother’s Days we had. This makes me feel lucky that we had those times together instead of being sad that she isn’t here.
On the actual day I will always be with my sister. There are lots of ways people find useful to remember their loved one and we most enjoy looking at photos! Before my mum died she was so determined to create strong and lasting memories for us as we grew older that she completed a photo album for every year of our lives. There’s nothing more effective to spark a happy emotion than a picture of you and your mum.
We will talk about fun things we did together, holidays and her silly humour. Even her annoying habits at times because they make us laugh now and hey, she was only human! We also have a memory box full of old cards and memorabilia of times we spent together. As my mum was fighting cancer for seven years she had the time to create these albums and boxes for us. If you don’t already have one I would definitely recommend getting a box, a tin or a book and filling it with whatever items bring back happy memories for you.
As well as all this we try to remember that if we are feeling sad and low that it doesn’t matter, it’s natural and the best remedy is to cuddle up on a comfy sofa with a duvet and one of her favourite movies – Father of the Bride – and a good cup of tea!”
We teamed up with Macmillan Cancer Support to produce a book for parents who are nearing the end of life to broach the subject with their child.The book, titled Preparing a Child for Loss, aims to open conversations with children to help them understand more about dying and to prepare them for the potential death of a close family member.